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Are you curious about the research which informed this app? Good news! We can fill you in.

Dr Tamara Maiuri has explained the research in an accessible and informative way on the HDBuzz website. She explains the necessary cautions to take when understanding the results from the study. 

The researchers, led by Prof Mel Ziman at Edith Cowan University, asked HEROS study participants to carry out gym-based and home-based exercises as well as occupational therapy for 9-18 months. The researchers monitored aspects known to be affected in the early stages of HD, like weight loss, mental health, and cognitive function such as learning and memory.

 

What they found was a general trend toward improvement in some of these symptoms, particularly problems with movement. Program participants didn’t lose as much weight as the ‘no exercise’ group, and they scored just a bit better on some of the learning and memory tests. Researchers have already published an initial analysis of the early, or ‘pilot’, phase of the study, and are now working on publishing the longer term follow-up study.

 

– “More evidence points to Huntington’s Disease exercise benefit.” Read the full article.

The HDBuzz site is dedicated to staying up to date with all news Huntington’s and is a great resource to follow for scientific research and breakthroughs.

If you’re particularly science minded, you can read the report on the Huntington’s HEROs on the Huntington’s WA website.

About Dr Maiuri:

Dr. Tamara Maiuri is a postdoctoral fellow in Dr. Ray Truant’s group at McMaster University, Canada. Prior to joining the Huntington’s disease field, Tamara obtained her PhD from the Medical Biophysics Department at the University of Toronto where she studied the cell biology of cancer-related genes. Her work in the Truant lab focuses on the normal biological functions of the huntingtin protein in hopes of understanding how they may be disrupted upon inheritance of the mutant huntingtin gene that causes HD.